A Diagnosis, of Sorts…


In previous posts, I’ve referred to me having health problems. Since my early teens, I have had various episodes of bodily weirdness, such as recurrent fainting episodes, GI problems, etc. Nothing serious would ever show up on labs and either the symptoms would pass over time or I’d just learn to live with them. In the last two years, however, my health problems have started to have a bigger impact on my daily life, limiting my ability to exercise and so forth. Also, various labs have been coming back confusingly irregular, while others have indicated that I am in perfect health. Finally, my inability to maintain my potassium levels, despite heavy supplementation, earned me a trip to an endocrinologist. After one round of labs with him, he informed me that my kidneys are dumping huge amounts of potassium and that I either had Cushing’s or intrinsic kidney disease. Today, he called to let me know that I have intrinsic kidney disease and need to get into a nephrologist in a hurry.

I’m still having a little trouble believing that after three decades of ill health, I finally have a medically documented explanation. I’d kind of lost all faith in the medical community and am still waiting for a zinger, such as the nephrologist saying that I don’t actually have kidney disease and she doesn’t know what is wrong with me or how to help me (while seeming to hint that a psychiatrist would be my best bet). At the same time, I know this is not possible, I’ve just been too sick recently and no normal person could take as much potassium as I have been taking without suffering from hyperkalemia (multiple prescription-strength tablets per day).

Anyway, I’ve been holding off on writing about this, as I do get tired of saying, “I’ve been having health problems” and never really having an answer to exactly what those health problems are. I feel that I owe you, my readers, some sort of explanation, however, as I feel that the quality of my blogging has gone done hill recently, as I have battled with lack of energy and brain fog. I haven’t even been doing as good a job of reading and commenting on other blogs, much less keeping up with Pinterest or updating Twitter, G+, or Facebook. I intend to blog next week and then take off two weeks for Christmas, my birthday, Gohan’s birthday, and New Year’s. Hopefully 2013 will find me having renewed energy and brain power.

You may also notice some other changes with my blog, however, as the last few months have caused me to question my spirituality, my values, my reasons for homeschooling, what I have accomplished with my life, what I would like to accomplish with what life I have left, and so forth and so on. Hopefully I won’t get too weird on all of you, as I’ve been having more and more episodes of feeling like my brain has been going out to “la la land” lately. This is most likely due to the fact that my kidneys aren’t filtering out enough toxins, so my brain is being poisoned.

One thing that will definitely have to change in my life, and will therefore most likely change my blog’s direction, is that I will need to start eating a lot cleaner. It’s not like I was one of those people who rushed out to stock up on Ding Dongs before Hostess went out of business or anything, but it is my understanding that I will need to adhere to a fairly strict diet that will require that my food be organic, low in protein, and free of any added chemicals. I will also be working on discontinuing my use of hair color, cosmetics, commercial skin products, and so forth.

I’m sorry if this post is way too rambling, I just am trying to be up front about things, but my current brain fog is making it a bit hard to word things as ideally as I would like.

Labels: Peg Dolls, Undifferentiated Connective Tissue Disorder
Posted by Maureen Sklaroff